Parent Patient Advocacy Committee (PPAC)

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In July 2012 the Parent/Patients Advocacy Committee was created after some initial discussions occurred at the 3rd European Member meeting of ICCCPO in April 2012, in Schengen. The aim of the group is to closely work with ENCCA on the design and implementation of its clinical research strategy, as well as on the access to clinical trials for patients.

Members (indicated into the following table) are all linked through ICCCPO and coordinated by the ENCCA project partner ÖK.

 

 

List of members

 

ARNOLD Frederic

UNAPECLE, France, http://unapecle.medicalistes.org

 

BASSET Luisa

FEPNC - Federacion Española de padres de Niños con Cáncer, Spain, www.cancerinfantil.org

 

KAMERIĆ Lejla

The heart for the kids with cancer in FBiH, Bosnia and Herzegovina, www.srcezadjecu.ba

 

KAMERIĆ Neira

The heart for the kids with cancer in FBiH / Cancer Survivor Network, Bosnia and Herzegovina, www.srcezadjecu.ba

 

KIENESBERGER Anita

Österreichische Kinder-Krebs-Hilfe, Austria, www.kinderkrebshilfe.at

 

TSIROU Aimilia

Kyttaro/Greek Survivors Association, Greece, http://floga.org.gr/?page_id=197

 

LACK Peter

Childhood Cancer Switzerland, Switzerland, www.kinderkrebshilfe.ch


WATTWIL Holly

Barncancerfonden Södra, Sweden, www.barncancerfonden.se


SCOBIE Nicole

Zoe4Life, Switzerland, zoe4life.org

 

Expert advisors

 

BODE Gerlind

Förderkreis für krebskranke Kinder und Jugendliche Bonn e.V., Germany, www.kinderkrebsstiftung.de

 

NAAFS-WILSTRA Marianne

VOKK, The Netherlands, www.vokk.nl

 

Project worker


KIENESBERGER Anita / ZIEGLER Jenny

Österreichische Kinder-Krebs-Hilfe, Austria, www.kinderkrebshilfe.at