Cancer in children and young people
remains an important global public health issue and one that only
cooperation between all stakeholders – health professionals,
researchers, parents, patients and survivors, as well as political
bodies, regulatory agencies, pharmaceutical companies, and fundraising
charities – can overcome.
As part of its aim to integrate all
stakeholders from the European paediatric oncology community, SIOPE is
therefore further developing its close partnership with engaged parent/patient and survivors advocates from all over Europe.
Over the years SIOPE has established a
direct contact and strong collaboration with the representatives of
European parents, patients and survivors through the European branch of Childhood Cancer International (CCI) and the Parent and Patient Advisory Committee (PPAC, established within the ENCCA Project).
particular, the international body representing families of children
with cancer, formerly known as ICCCPO, changed its name last year and it
is now called Childhood Cancer International (CCI). At the last SIOP
Congress in Toronto, CCI also renewed its Board and Ms Carmen Auste from
the Philippines was elected as a new President (for Europe, Luisa
Basset from Spain was elected). This year, CCI launched a very
successful Global Campaign to mark International Childhood Cancer Day
(15th February). This collaborative campaign aimed to express support
and promote deeper understanding of all issues impacting on
children/adolescents with cancer, the survivors, their families and the
society as a whole. As a close partner in the same fight for a better
futture for children and adolescents with cancer, SIOPE organised the
2015 edition of the its International Childhood Cancer Awareness Day at the European Parliament (3rd
February 2015, Brussels, Belgium). Our Society advocated better EU
legislation for paediatric oncology research by particularly focusing on
‘Balancing Personal Data Protection and Research Progress: The Case of Childhood Cancer’.