Location: Brussels, Belgium
Location: Brussels, Belgium
Location: Brussels, Belgium

    SIOPE – MAC Launch:

    European Cancer Plan for Children and Adolescents

    Wednesday 18th November 2015

    (12:30 – 14:30, starting with a networking lunch at 12:00)

    European Parliament, Brussels, Belgium – Hosted by MEP Mr Alojz Peterle, MAC President





    We look forward to welcoming ENCCA partners at the upcoming launch at the EU-policy level of the SIOPE European Cancer Plan for Children and Adolescents.


    SIOPE is joining efforts with the Members of the European Parliament Against Cancer (MAC) to unveil this long-term vision of the entire child cancer community at the EU-level, seeking cooperation with policymakers in order to increase in the cure rate, improve the quality of survivorship, and foster multi-stakeholder dialogue and cooperation for the best results.


    The SIOPE – MAC event will present the European Cancer Plan for Children and Adolescents – from the extensive consultation and consensus-building process leading up to its formulation and the prominent role of parents, patients and survivors, to the best ways towards implementation through joint efforts. Collaborative models and enabling EU initiatives will be addressed, in particular on:

    • Eradicating inequalities in access to treatment, care, and expertise
    • Boosting innovation in medicines development
    • Securing optimal organisation of follow up care for survivors


    More information:

    In view to ensure the sustainability of the ENCCA project, SIOPE just launched a 10 years Strategic Plan to increase both cure rate and quality of cure, as well as to tackle inequalities across Europe.

    The Plan was first elaborated within the ENCCA network of excellence (European Network for Cancer research in Children and Adolescents, FP7 2011-2015), and enriched through the contributions of SIOPE members and partners, as well as parents, patients, and survivors' advocates.At the conference 'Joining efforts for a brighter future for children and adolescents with cancer – The European roadmap to Horizon 2020' (18-19 September 2014, Brussels) approximately 160 participants from 31 countries publicly endorsed the proposal and called for a European Cancer Plan for Children and Adolescents that would  address both clinical care and research.

    The ultimate goal of the SIOPE Strategic Plan is to increase the survival that is free from disease and late effects- after ten years from the disease (and beyond) by achieving seven key objectives. Cross-tumour platforms and projects are being set up to facilitate the Plan's implementation spanning the critical variables influencing success, such as outcomes research to monitor progress made, a platform to provide radiotherapy quality assurance, a multi-stakeholder platform with academia, industry, regulators and parents to improve paediatric development of new oncology drugs, as well as a research program to address ethics and psycho-social aspects of childhood cancer.

    A  European Reference Network will be created to facilitate cross-border healthcare and access to expertise for paediatric cancer patients across Europe no matter where they live. An efficient e-Health infrastructure is set to support such system building on the ExPO-r-Net project.

    The 'Oncopolicy' programme will advocate better EU policies to address the needs of young people with cancer. Indeed, SIOPE will help the implementation of cross border clinical trials within the new Clinical trial regulation and advocate for a Data Protection regulation that will not jeopardize research efforts for children and adolescents while assuring privacy to all citizens. The implementation of the EU paediatric medicine regulation must urgently be improved in order to adequately address the needs of children with cancer. Specific new incentives might be required.

    SIOPE will steer and coordinate the effective implementation of this Plan, together with all stakeholders; existing partnerships will be strengthened with adult oncologists as well as professionals from other continents, while public-private partnerships – recognising the specificities of paediatric haematology-oncology – will be established with industry. SIOPE established a partnership with Childhood Cancer International, the federation of parents, patients and survivors organizations to implement the Plan.

    The SIOPE Strategic Plan has been officially presented during the European Cancer Congress (25-29 September 2015, Vienna, Austria), and will be also further discussed at the EU-policy level during an event which will take place on 18th November 2015 at the European Parliament in Brussels, Belgium (more information: www.siope.eu/?p=3428).

    We trust that this Plan will inspire many future initiatives in the field. It has to date already achieved an important milestone of broad multi-stakeholder consensus and we look forward to working with all relevant stakeholders to make it a success, preparing a brighter future for children and adolescents with cancer in our region.

    Discover the SIOPE European Cancer Plan for Children and Adolescents here: www.siope.eu/SIOPE_StrategicPlan2015

    ENCCA General Assembly.jpg

    The 2015 ENCCA General Assembly and ECRC meeting took place last 15th-16th January in the Belgian capital. This was the 4th General Assembly of the project, and the second day of the meeting also hosted a joint ENCCA-ECRC meeting which focused on the most urgent aspects concerning the implementation of the EU Clinical Trial Regulation.

    This was the perfect occasion to celebrate the major achievements obtained by ENCCA after four years as, within this timeframe, project partners managed to build a solid and well renowned network of excellence for paediatric cancer research. Last January meeting participants made an assessment of the efficacy and quality of the results achieved so far, having in mind the original project aim to improve the quality of childhood cancer healthcare, the accessibility of paediatric drugs and innovative therapies, as well as the quality of life of survivors across Europe.

    Several European-wide councils and committees have been created thanks to the ENCCA project: among the many, the European Clinical Research Council for paediatric oncology (ECRC), which managed to voice the common harmonised agenda of the clinical and research community at the European level; the Ethics' Advisory Committee (EAC), that covered very important aspects linked to treatment and follow-up; and the Parent Patient Advocacy Committee (PPAC), which represented an opportunity to strongly express paediatric oncology patients' needs in Europe. All these and other bodies will be integrated in the SIOPE structure after the end of ENCCA, in order to ensure the sustainability of the project achievements on the long-term.

    The contribution of ENCCA partners to the implementation of several advocacy campaigns led by SIOPE, such as the amendments to the Clinical Trial Regulation, has been also underlined during this meeting. Finally, participants also reminded the importance of the outcome of the SIOPE-ENCCA Conference in 2014, an important event which effectively opened horizons for a shared ambitious vision on the future of paediatric oncology in the next decade.

    All presentations showed during the last ENCCA General Assembly and ECRC meeting have now been made available for partners on the project intranet (for more information, please contact the ENCCA Project Manager, Mr Zoltán Dobai encca@ccri.at).

     Introduction to ENCCA