2015
05
Aug
2015
13
Mai
Location: Florence, Italy
2015
15
Mai
Location: London, UK
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    International Childhood Cancer Day - ICCD (15th February) is a key date for all childhood cancer patients, their families and all those who care for them. This is why SIOPE this year effectively raised awareness on the needs and challenges faced by children and adolescents with cancer in different ways.

    SIOPE started by advocating better EU legislation for paediatric oncology research, at the heart of finding better and more effective cures for childhood cancer. The 2015 edition of the SIOPE's influential International Childhood Cancer Awareness Day (3rd February 2015, European Parliament, Brussels, Belgium) focused on 'Balancing Personal Data Protection and Research Progress: The Case of Childhood Cancer'. Hosted by our long-standing supporter, Member of the European Parliament Ms. Glenis Willmott, the event gathered more than 80 participants from all over Europe, who debated the projected consequences of the new EU Data Protection Regulation on childhood cancer research (see SIOPE Press Release, 4/2/2015).

    On 5-6 February ENCCA co-organised the 3rd Paediatric Oncology Conference 'Prioritisation in Paediatric Oncology Drug Development' in Vienna, Austria, the 3rd meeting of an ongoing series of biennial conferences organised in partnership with ITCC, CDDF and SIOPE. This multi-stakeholder event promoted progress in the field of paediatric oncology drug development through input from all concerned stakeholders: regulatory bodies, academia, the pharmaceutical industry, parents and policymakers. Proposals from a Platform on Paediatric Oncology, created in December 2013 to improve drug development for children and adolescents with cancer (see article on European Journal of Cancer), were discussed during the conference.

    SIOPE fully supported and engaged in the Global ICCD Campaign launched by Childhood Cancer International, the international body representing families of children with cancer, and close partner of SIOPE (see here). This collaborative campaign aimed to express support and promote deeper understanding of all issues impacting on children/adolescents with cancer, the survivors, their families and the society as a whole.

    Prof Gilles Vassal, the President of SIOPE, spent many days around the date 15th February in raising awareness on the need for better and more equitable cure for childhood cancer in Europe.
    After having led our European Parliament event on 3rd February, he was invited as a key guest of the French TV programme "Le magazine de la santé" (14'26'') on 12th February 2015, together with Ms Patricia Blanc, parent advocate from Imagine for Margo and strong partner of SIOPE.

    On 13rd February he also released an interview to the Swiss radio and, on the occasion of the International Childhood Cancer Day, Prof Vassal took part in two outstanding events:

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    Joining Efforts for a Brighter Future for Children and Adolescents with Cancer

    The European Roadmap to Horizon 2020

    18-19 September 2014, Brussels, Belgium (Renaissance Brussels Hotel)

    Webpage

    ​The Spanish Association of Adolescents and Young Adults with Cancer (AAA) and ENCCA organized last 27 and 28 March the Second International Course on Adolescents and Young Adults with Cancer in Madrid.

    The aim of the course was to introduce the Association, specially to create professional awareness and highlight the importance of providing specialized attention (medical, social and psychological) to these patients.

    More information:

    Video presentations from the 2nd International Course on Adolescents and Young Adults with Cancer


     Introduction to ENCCA

     

     

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