The 2015 ENCCA General Assembly and ECRC meeting took place last 15th-16th January in the Belgian capital. This was the 4th General Assembly of the project, and the second day of the meeting also hosted a joint ENCCA-ECRC meeting which focused on the most urgent aspects concerning the implementation of the EU Clinical Trial Regulation.
This was the perfect occasion to celebrate the major achievements obtained by ENCCA after four years as, within this timeframe, project partners managed to build a solid and well renowned network of excellence for paediatric cancer research. Last January meeting participants made an assessment of the efficacy and quality of the results achieved so far, having in mind the original project aim to improve the quality of childhood cancer healthcare, the accessibility of paediatric drugs and innovative therapies, as well as the quality of life of survivors across Europe.
Several European-wide councils and committees have been created thanks to the ENCCA project: among the many, the European Clinical Research Council for paediatric oncology (ECRC), which managed to voice the common harmonised agenda of the clinical and research community at the European level; the Ethics' Advisory Committee (EAC), that covered very important aspects linked to treatment and follow-up; and the Parent Patient Advocacy Committee (PPAC), which represented an opportunity to strongly express paediatric oncology patients' needs in Europe. All these and other bodies will be integrated in the SIOPE structure after the end of ENCCA, in order to ensure the sustainability of the project achievements on the long-term.
The contribution of ENCCA partners to the implementation of several advocacy campaigns led by SIOPE, such as the amendments to the Clinical Trial Regulation, has been also underlined during this meeting. Finally, participants also reminded the importance of the outcome of the SIOPE-ENCCA Conference in 2014, an important event which effectively opened horizons for a shared ambitious vision on the future of paediatric oncology in the next decade.
All presentations showed during the last ENCCA General Assembly and ECRC meeting have now been made available for partners on the project intranet (for more information, please contact the ENCCA Project Manager, Mr Zoltán Dobai email@example.com).